Lupus
Contents of this Article
For More Information About Lupus
In Alphabetical Order:
Alliance for Lupus Research, Inc.
28 West 44th Street, Suite 1217
New York, New York 10036
Phone: 212-218-2840
Toll Free: 800-867-1743
Website: www.lupusresearch.org
The Alliance for Lupus Research, Inc. (ALR), is a nonprofit organization devoted exclusively to the support of promising research for the prevention, treatment, and cure of lupus. Through accelerated, focused, goal-oriented research programs, the ALR aims to promote basic and clinical sciences to achieve major advances leading to a better understanding of the causes of lupus.
American Autoimmune Related Diseases Association, Inc. (AARDA)
22100 Gratiot Ave.
East Detroit, Michigan 48021
Phone: 586-776-3900
Toll Free: 800-598-4668
Fax: 586-776-3903
Email: aarda@aarda.org
Website: http://www.aarda.org
The American Autoimmune-Related Diseases Association (AARDA) is a nonprofit voluntary health agency dedicated to bringing a national focus and collaborative effort to the more than 100 known autoimmune diseases through education, awareness, research, and patient services. By collaborating with the National Coalition of Autoimmune Patient Groups (NCAPG), AARDA supports legislative advocacy for autoimmune disease patients. AARDA provides free patient education information, physician and agency referrals, forums and symposia, and a quarterly newsletter.
American College of Rheumatology (ACR)
1800 Century Place, Suite 250
Atlanta, Georgia 30345-4300
Phone: 404-633-3777
Fax: 404-633-1870
Website: www.rheumatology.org
The American College of Rheumatology (ACR) is an organization of doctors and associated health professionals who specialize in arthritis and related diseases of the bones, joints, and muscles. The Association of Rheumatology Health Professionals, a division of ACR, aims to enhance the knowledge and skills of rheumatology health professionals and to promote their involvement in rheumatology research, education, and quality patient care. The association also works to advance and promote basic and continuing education in rheumatology for health professionals who provide care to people with rheumatic diseases.
Arthritis Foundation
P.O. Box 7669
Atlanta, Georgia 30357-0669
Phone: 404-872-7100
Toll Free: 800-283-7800
Website: www.arthritis.org
The Arthritis Foundation is devoted to supporting arthritis research and providing educational and other services to individuals with arthritis. The foundation publishes a free pamphlet on rheumatoid arthritis and a magazine for members on all types of arthritis. It also provides up-to-date information on research and treatment, nutrition, alternative therapies, and self-management strategies. Chapters nationwide offer exercise programs, classes, support groups, physician referral services, and free literature. The foundation also has free information about lupus, scleroderma, and other autoimmune and rheumatic conditions on its Web site.
Lupus Clinical Trials Consortium, Inc. (LCTC)
47 Hulfish Street, Suite 442
Princeton, New Jersey 08540
Phone: 609-921-6670
The Lupus Clinical Trials Consortium, Inc. (LCTC) is a nonprofit organization that encourages the identification and testing of promising new therapies for lupus. It provides infrastructure support grants to certain academic institutions to support their clinical research activities; encourages lupus clinical researchers from those institutions to share their expertise; supports and conducts educational efforts to show the need for lupus clinical research; and disseminates scientific insights to advance the discovery of new lupus therapies.
Lupus Foundation of America (LFA)
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone: 202-349-1155
Toll Free: 800-558-0121
Fax: 202-349-1156
Email: lupusinfo@lupus.org
Website: www.lupus.org
The Lupus Foundation of America is a national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus; and to providing support, services and hope to all people with this condition. The LFA and its network of nearly 300 chapters and support groups conduct programs of research, education, and advocacy.
Lupus Research Institute
330 Seventh Ave, Suite 1701
New York, New York 10001
Phone: 212-812-9881
Fax: 212-545-1843
Email: Lupus@LupusNY.org
Website: www.lupusresearchinstitute.org
The Lupus Research Institute provides funds for promising new ideas for curing, preventing, and treating lupus.
National Heart, Lung, and Blood Institute
Phone: 301-592-8573
Website: www.nhlbi.nih.gov
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, Maryland 20892-3675
Phone: 301-495-4484
Toll Free: 877-22-NIAMS (226-4267)
TTY: 301-565-2966
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Website: www.niams.nih.gov
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information Clearinghouse is a public service sponsored by the NIAMS that provides health information and information sources. The clearinghouse provides information on lupus. Fact sheets, additional information, and research updates can also be found on the NIAMS Web site at www.niams.nih.gov.
National Institute of Neurological Disorders and Stroke
Phone: 800-352-9424
Website: www.ninds.nih.gov
National Kidney and Urologic Diseases Information Clearinghouse
Phone: 800-891-5390
Website: kidney.niddk.nih.gov/
National Library of Medicine's MedlinePlus
Website: www.nlm.nih.gov/medlineplus/lupus.html
Rheuminations, Inc.
221 East 48th Street, Ground Floor
New York, New York 10017
Phone: 212-593-5180
Fax: 212-593-5181
Website: www.dxlupus.org
Rheuminations, Inc. is a private, nonprofit foundation committed to funding excellence in medical research, which will foster a better understanding of the causes of lupus and bring new treatments to market; educate and empower those who live with lupus and those who care for them; and establish a higher level of public awareness about the disease.
SLE Lupus Foundation
330 Seventh Avenue, Suite 1701
New York, New York 10001
Phone: 212-685-4118
Toll Free: 800-74-LUPUS (745-8787)
Fax: 212-545-1843
Email: lupus@lupusny.org
Website: www.lupusny.org
The SLE (Systemic Lupus Erythematosus) Foundation supports and encourages medical research to find the cause and cure of lupus, and improve its diagnosis and treatment. It also provides a wide variety of services to help people with lupus and their families. In addition, this voluntary organization conducts a broad-based public education program to raise awareness of lupus, and increase understanding of this serious chronic (lasting a long time) autoimmune disease.
Womens Health
Call Center at 1-800-994-9662
womenshealth.gov
References:
1) The National Women's Health Information Center - U.S. Department of Health and Human Services - Office on Women's Health - May 2008 - www.4woman.gov
2) National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) - Information Clearinghouse - National Institutes of Health - Department of Health and Human Services - NIH Publication No. 03-4178 - September 1997 - Revised August 2003 - www.niams.nih.gov
This summary is a general overview about the topic discussed and does not include all the facts, or include everything there is to know about any medicine and/or products mentioned. Do not use any medicine and/or products without first talking to your doctor. Possible side effects of medications, other than those listed, may occur. Full Disclaimer & General Safety Advisory